|Extracts from the October 2012 Kin Magazine written by Debra Berlet, President, Cystic Fibrosis Canada
As Kin Canada and Cystic Fibrosis Canada celebrate 49 years of valued partnership, 2013 also marks another major milestone: $40 million raised by Kinsmen and Kinettes to help Canadians living with cystic fibrosis.
"Kin has raised over $40 million out of the $140 million that Cystic Fibrosis Canada has invested in life-saving CF research and care. This means that ONE out of FOUR dollars raised for Canadians with cystic fibrosis has resulted from the dedication and commitment of a Kinsman or Kinette. Tremendous work!"
"Consider this: When Kinsmen and Kinettes first joined the fight against cystic fibrosis" in 1963, "most children with the disease did not survive long enough to attend kindergarten. Today, as a direct result of the research our partnership funds, children and young adults with cystic fibrosis are often living into their 40's and beyond. That means an extra year of life expectancy for a child with cystic fibrosis has been achieved for almost every year of Kin support."
More about cystic fibrosis.
Cystic fibrosis (CF) is the most common, fatal genetic disease affecting young Canadians. CF affects mainly the lungs and the digestive system. In the lungs, CF causes severe breathing problems. A build-up of thick mucus makes it difficult to clear bacteria and leads to cycles of infection and inflammation, which damage the delicate lung tissues.
In the digestive tract, CF makes it extremely difficult to digest and absorb adequate nutrients from food. Thick mucus also blocks the ducts of the pancreas, preventing enzymes from reaching the intestines to digest food. Therefore, persons with CF must consume a large number of artificial enzymes (on average 20 pills a day) with every meal and snack, to help them absorb adequate nutrition from their food. They must also follow a demanding daily routine of physical therapy to keep the lungs free of congestion and infection.